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I am not sure where to go to try and get my daughter's site out there, but we are in serious need of help. She has been diagnosed with cgd ... I created a site for her www.helplianow.com on this site you will find information aout the disorder and current fundraisers we have going on .... if you know of any others I can add please share with me ... Thanks Kristy, Luis, and Lia Please help us get the word ↓
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| Name: Irene | Date: Apr 29th, 2006 5:39 AM |
I will pray for you most definately, and i will also put your details down at my church where i go each sunday,
what is your daughters name, is it lia?
where are you from?
anyway ill come back later and hopefully you have replied to this but if not what youve given here is enough as God knows exactly who and where you are,
all will be ok, take care and God bless you all xx ↑ |
| Name: anaca | Date: Apr 29th, 2006 5:41 AM |
| Name: kristy | Date: Apr 29th, 2006 10:27 AM |
thank you and god bless .......... her name is lia nicole custodio .... and cgd stands for Chronic Granulomatous Disorder ......People with CGD have a faulty bone
marrow gene, which means that certain white blood cells do
not function correctly ↑ |
| Name: Irene | Date: Apr 29th, 2006 4:45 PM |
Dont need to thank me, i love praying for everyone who is in need of healing, and its my joy nd pleasure espevially for your precious daughter!
Im off to church in afew hours and Im putting her on our prayer request list and will be praying myself everyday!
dont need to worry Kristy but i know how hard it must be for you and Hubby,
but keep the faith honey and just keep praying for your little one, read the bible(Psalms) today I'll find out which verse is best for you read continuiosly in order to help you even more,
Keep smiling for Lia and may God bless her and Keep her safe& May he have his healing hand of Protection over her and Heal her, Rebuke the disorder &feel her with nothing but Peace & pain free,
take care and I'll chat with you soon...
God bless you :-) xx ↑ |
| Name: Lisa | Date: Apr 29th, 2006 5:39 PM |
| Aww! I'm truly sorry to hear that and I hope things get better for her and your family!! ↑ |
| Name: Maxie | Date: Apr 30th, 2006 1:29 AM |
Kristy...without a doubt I will be praying for your daughter and your family. God will indeed take care of your family..have faith and trust. Thank you for bringing this to our forum and allowing us an oportunity to pray for someone else. Too...bringing CGD into the light.
God Bless
Maxie ↑ |
| Name: kristy | Date: Apr 30th, 2006 1:36 AM |
| thank you to everyone and I will keep you posted .. she goes to the doctor weekly ... Today she seems to be getting a cold which is the worst thing we could have happen right now. I feel sometimes like I can't protect her enough .. We are so drained mentally from the past few months .. it's so scary watching your child go thru this knowing that there is no cure .. I know alot of parents and people in general know someone with some type of illness that has no cure and can understand exactly what I am saying .. she wants to act like a normal child and gets so bored always being locked up inside but i just don't know what else to do ↑ |
| Name: Maxie | Date: Apr 30th, 2006 2:09 AM |
Hi Kristy...I cant even imagine..and dont want to. I am amazed that you are thinking of others and the fact they may well be dealing with similar pain. Shows me the nature of your character. Kristy we are all here for you anytime you need us.
Maybe you could try bringing her friends to her. Sounds simple enough but I dont know all the details...but if its possible to do the inviting or let her do it ...more often than usual ..maybe it might help. At least lift her spirts...?! ↑ |
| Name: Irene | Date: Apr 30th, 2006 1:55 PM |
HEY kRISTY, how are you feeling today hun?
I put lia's name and details on prayer chain at church today,
keep the faith is all i can say, Trust in the Lord and smile for your little Angel,
God bless you xx ↑ |
| Name: Lynne n | Date: May 5th, 2006 9:49 PM |
| Sorry to hear that your daughter is ill,thinking of you! ↑ |
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