| Name: VB | Date: Aug 10th, 2007 6:34 PM |
| Yes, we are all well, just busy. School started for us on Thurs. I was so excited!! Stay at home moms tend to be excited I believe, a little moment to ourselves.My son is in first grade and daughter in a two hr preschool program. It's 103 degrees (F)here, no joke. How is school in Queensland? are you in or out, some people are never in or out. nice to hear from you. ↑ |
| Name: Shirley | Date: Aug 15th, 2007 11:24 PM |
| hi vb kids are in school but i have the twins home with the flu today. my youngest karina has been sick too but she is back to school today. i am fine but my neck and back are giving me pain at present my birthday was on the 4.08.07. Alissa and Sarah are 11 on Saturday 18.8.07 karina will be 8 on the 26.08.07. it was mine and Davids 19th anniversary on the 6.08.07. hope you are well from your far far away friend Shirley. ↑ |
| Name: Kelly | Date: Aug 16th, 2007 4:06 AM |
Hi, I am new too. It will get better I think. I was so happy this week to have nurses to two days this week. I went out of the house for the 1st time in 3 months today! I have lived in the hospital for over a year with my son Amos. He is wonderful, and I love him so, but he has trisomy 18 and is suppose to be dead . My doctors keep telling me that anyway. They got sick of waiting and send us home.
But today I found out I am pregnant again! Oh my goodness huh! I dont know what to do, I dont even what to tell anyone!
I will never hear the end of it. So I need friends too. I am isolated at home too. And get this it is my 8th child now!
Hope this made you smile , but it is all true. I would love to be friends with you. ↑ |
| Name: VB | Date: Aug 17th, 2007 10:41 AM |
| Hello to Queensland again. Shirley, hope you all get over that flu wow what a time you've had. Kelly, wow, eight kids. Someone once told me, there's one kid and there's more than one kid. Apparently if you can handle two you can handle eight. My heart goes out to you girl, wish you the best. ↑ |
| Name: Peta | Date: Aug 23rd, 2007 12:09 AM |
Hi Rochelle,
I have an aussie website for families affected by KABUKI SYNDROME..Please visit www.sakks.org
Peta ↑ |
| Name: Shirley | Date: Aug 27th, 2007 6:30 AM |
Hi VB, how are you i hope you and all your family are happy and well
we have just had 4 birthdays in our family, my birthday was on the 4.8.07 Aissa & Sarah were11 on 18.8.07 and Karina was 9 on the 26.8.07
August is a very busy time for us and very costly. Everyone is nearly right from the flu but my hubby and little karina is still coughing my head is acheing i hope im not getting sick but its probably my turn as i have been nursing a sick hub & 5 children for weeks. hope to hear from you soon. your friend from qld. my siamese cat had 6 kittens. ↑ |
| Name: VB | Date: Aug 27th, 2007 9:44 AM |
| Of course your cat had six kittens, she's couldn't let you out do her! haha. Glad your family is getting well, hopefully hour hubby will be back to 100% soon. We are all fine, school is going well if my little six year old will settle down and behave! Can you believe a boy being born deaf, gets in trouble everyday for talking? ↑ |
| Name: gbenga | Date: Sep 3rd, 2007 10:05 PM |
| am gbenga from nigeria , i would like to be one of your member ↑ |
| Name: VB | Date: Sep 4th, 2007 12:09 AM |
| HI GBENGA from Nigeria, what's your story?Welcome ↑ |
| Name: mark | Date: Sep 9th, 2007 7:17 PM |
| hi, i can be your friend only if you can be my friend. ↑ |
| Name: mark | Date: Sep 9th, 2007 7:46 PM |
| hi, i can be your husband because i understand you feeling ↑ |
| Name: mark | Date: Sep 9th, 2007 7:57 PM |
| hi,understander how you feel that why i want to choose you has my friend ↑ |
| Name: de | Date: Sep 9th, 2007 8:13 PM |
| Name: shade | Date: Sep 11th, 2007 6:53 AM |
| i need help im kicked out ↑ |
| Name: helper | Date: Sep 11th, 2007 7:01 AM |
| i get that way too but hen i turn around and say better to be happy with my lot because it is it hard enough to be a mom of two but its harder if you where not now that you have two be happy and then g-d willing will be a great futer to you and grow to be the best they can be with a big smile ↑ |
| Name: kim | Date: Sep 11th, 2007 3:46 PM |
| hello, i am new to this, i have a disabled 3yr old daughter named Angel, she is my reason for waking up everyday. I just wanted to talk to someone who has some of the same issues that i do. ↑ |
| Name: shirley | Date: Sep 13th, 2007 10:24 PM |
| We sent the kittens to the pet shop as we've got 3 cats already and 3 is the legal limit. we also have a new puppy we called it little angel. My smallest twin sarah came second it the Japanese competition. Came eighth in the 2.5km. And 25 in cross country out of 72 people. Alissa my biggest twin and her friends came 1st in there school talent show by doing a dance and sarah and her friends came 2nd in the talent show. hope you are all well and happy from your new friend shirley. ↑ |
| Name: shirley | Date: Sep 14th, 2007 12:43 AM |
| hi VB We sent the kittens to the pet shop as we've got 3 cats already and 3 is the legal limit. we also have a new puppy we called it little angel. My smallest twin Sarah came second it the Japanese competition. Came eighth in the 2.5km. And 25 in cross country out of 72 people. Alissa my biggest twin and her friends came 1st in there school talent show by doing a dance and Sarah and her friends came 2nd in the talent show. hope you are all well and happy from your new friend Shirley. ↑ |
| Name: vb | Date: Sep 14th, 2007 11:11 AM |
| That's great, so I have to know, what did they dance to? I'm sure it was great, did you get to go? It's still warm here and finally raining, we've had a terrible droubt here in the south of U.S. I don't know what the limit is here for cats, more like twelve or something.?.? keep in touch ↑ |
| Name: roz | Date: Sep 21st, 2007 8:25 PM |
| hun, u make me feel a fraud. my only daughter just gone to uni & today found out am aboutto lose my home but thats nothing. u are so positive & makeme feel ashamed about the way i feel now ↑ |
| Name: lisa | Date: Sep 21st, 2007 9:19 PM |
| Mary never give up things and love one are put in our life for a reason. I have two boys that are sick also but I love them with all my heart you can e-mail me if you need a friend or someone to just say a word to [email protected] ↑ |
| Name: shirley | Date: Sep 23rd, 2007 5:35 AM |
| that's good that it rained she says she danced to let's get it started and S.O.S. It's school holidays and all the girls are home which means more cleaning we're not going any where for the holidays but we may go on some trips to the beach. ↑ |
| Name: Vb | Date: Sep 23rd, 2007 3:58 PM |
| love the beach, but it'll be next year before we get to go. Can't wait the kids will be four and seven then! Enjoy the vacation! ↑ |
| Name: angela | Date: Sep 25th, 2007 4:58 AM |
| i am 15 years old and i have brown hair and brown eyes ↑ |
| Name: taylor | Date: Sep 28th, 2007 10:35 PM |
| Name: Shannon | Date: Oct 10th, 2007 2:43 AM |
| hi...i am in the process of adopting my little boy....he was left at a home where they didnt even know his name while his biological parents went out and did drugs...needless to say they had him taken away and i was the lucky one who got him...he came in to my life at 8 months old ...he couldnt even sit up yet and didnt know how to eat.....well ive had him for over two years now and at age 2 we found out he had autism...i wouldnt trade him in for the world.. i have never felt more loved than i do by him ...i believe i am truely blessed ...these are very special children...thanx for listening... ↑ |
| Name: shirley | Date: Oct 10th, 2007 10:07 AM |
hi VB how r u and your family hope you are all well we are getting really hot down here now the weather is reaching 33 degrees celcius and rising humitaty is shocking. I get head aches in summer. How r your kids mine are fine.
from your friend Shirley ↑ |
| Name: VB | Date: Oct 10th, 2007 1:05 PM |
| As fall weather approaches us here the weather is starting to cool off a bit (not much) Hope vacation was fun. I am already Christmas shopping. Kids are good. My little boy may eventually need a jaw distraction (break bone to extend it) hopefully that'll be a while away! ↑ |
| Name: shirley | Date: Oct 17th, 2007 4:59 AM |
Hi VB sorry to hear about the operation hope everything goes well Sarah's staying home with tonsillitis and Alissa with a chesty cough.
From your friend Shirley ↑ |
| Name: tammy | Date: Oct 17th, 2007 10:45 AM |
| i wonder that myself ever day. my daughter has special needs and hurts me when my husband goes to work. i have a bite mark on my arm as we speak. i don't know what to do. she is 11 years old and acts ok when my husband is home. sometimes i don't know how much more i can take. my husband is the only person that helps. i feel kinda of bitter towards my own mother because she doesn't even offer to help me. she will spend time with my older son but not my daughter. i don't know what else to do. i cry alot and wish that she would be normal like all the other kids. but i know that will never happen. i don't have anyone who understands what i am going through. my sister in law says that she doesn't know how i do it , that she wouldn't be able to. i thought that was kinda of cold of her to say. i wish that i knew of a support group to go to. i'm sorry i'm an encouragement. maybe i just needed to let it all out to someone who understands what i am going through. i wish the best for you. if you need to talk please write back. just let it all out, sometimes that in itself helps. ↑ |
| Name: vb | Date: Oct 17th, 2007 5:09 PM |
shirley, hope the girls are better! we don't even have a surgery scheduled yet, they may want to wait a couple of years or may want to do it now, who knows.?
Tammy, do you not have someone from Children's Rehab Services helping you? I couldn't do it all either. You need to google your state's name w/the words Children's Rehab Services. Then contact them so they can send people out to help you. I was told recently by the behavioral specialist and my daughter's preschool that ALL children need structure and need to learn consequence for their actions. Of course this was preschool and we were discussing time out...she said they stay in time out one minute per their mental age. Look into getting some outside help. You should be able to find some help at no cost to you! I will say that all kids would probably behave this way too if they could. Meaning, sometimes we don't discipline our kids or even know how to give them structure unless someone shows us, especially if they have a disability. I don't know where I'd be without people surrounding me, telling me what to do and learning how to handle certain situations. You're just doing the best you can w/out help so I'd suggest you find someone to help you. Your mom probably don't know what to do either. You need a professional to come by once per week or so and help teach you and if you already have this, you need to talk about these biting episodes so she/he can help you find a solution. good luck ↑ |
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