| Name: merrideth | Date: Feb 21st, 2006 3:37 PM |
| hi I have a 3 1/2 year old with c.p. Lets talk sometime ↑ |
| Name: Jamie | Date: Mar 10th, 2006 5:46 AM |
| i am sixteen years old and i have a little brother who is eleven years old now, he has cp also ↑ |
| Name: Jaclyn | Date: Mar 10th, 2006 8:21 PM |
Hello. I have a six year old boy with cp and a seizure disorder. Thankfully, he hasn't had a seizure for about 2 yrs now.
Would you like to talk? ↑ |
| Name: aaron | Date: Mar 10th, 2006 10:02 PM |
| Hi jaclyn i'm 29 and ihve cp tooo.wanna talkek? ↑ |
| Name: stacey | Date: Mar 20th, 2006 3:17 PM |
| hi, i am writing to ask if any parents of a child with CP would like to talk to me and help me find out what it is like to bring up a child with CP. I am asking for this information because i am 15 years old and i take health and social care as a study at school. i am doing a case study on children with CP. please if you feel alright with speaking to me please get incontact thank you for your time from stacey x x x ↑ |
| Name: JASMINE | Date: Mar 20th, 2006 5:44 PM |
| Hi stacey i'm 27 and i have a 5 year old boy with CP it's pretty bad and he's in a wheelchair. So if you have any questions i would be happy to answer them. ↑ |
| Name: Taohidul Hassan | Date: Mar 23rd, 2006 7:21 PM |
| My wife and I both have same blood group (O+ve). What are the chances of having a child, and please also let me know if there are any problems for the couple having same blood group if they want to have child? Because I have heard that if parents have same blood group then the baby born with some problem with disorders… so what about your thinking??? please reply to my email address: [email protected]. thank you. ↑ |
| Name: Sue | Date: Mar 31st, 2006 6:52 AM |
| I have a four year old son with CP. I was wondering if anybody has tried HBOT - Hyperbaric Oxygen Therapy. We are considering the treatment in Australia, but cannot contact anybody who has had the treatment to see if the outcome is worth it. My son has low tone - especially his trunk, but is up walking on a frame. He cannot stand indepentatly and is very unstable is all positions. If anybody had tried it I would greatly appreciate feedback to see if the treatment is worth considering. ↑ |
| Name: Cass | Date: Apr 2nd, 2006 11:58 PM |
| I have a daughter who is five and has mixed cp mild to moderate. Developmental delayed but notlearning impaired. She was a 25 weeker but her twin has no symptoms ↑ |
| Name: MICHELLE | Date: Apr 6th, 2006 5:10 PM |
| HELO TO EVERYONE. I HAVE A 6 YEAR OLD SON WHO HAS CP, AUTISIM AND A SEIZURE CONDITION. HE DID NOT START TO WALK UNTIL HE WAS 3 YEARS OLD. HE STARTED PUBLIC SCHOOL AT 21/2 THEY USE TO PUT HIM IN THIS CRAWLLING SWING THING AND THAT GOT HIM MOVING AROUND MORE THEN AFTER THAT THERE WAS THIS WALKER THAT IS SOLD AT TARGET OR WALMART THAT THEY HAD GOTTEN TO SEE IF THAT WOULD HELP AND IT DID. IT IS THE ONE THAT YOU CAN TAKE THE SEAT OUT OF AND IT TURNS INTO A WALKER LIKE WHAT THE ELDERLY USE. ANYWAYS HIS CAN RUN NOW AND LEAVE ME BEHIND. HE DOES WALK ON HIS TOES AND HIS TOES POINT IN WARD BUT THAT DOES NOT SLOW HIM DOWN. THE DOCTORS ARE LOOKING INTO HIM GETTING BOTOX TO HELP HIM WITH THE TOE WALKING I GUESS WE'LL SEE HOW THA GOES. HE DOES NOT EAT REGULAR FOOD YET THOUGH HE WILL ONLY EAT STAGE 2 BABY FOOD NOT SURE WHY BUT WE ARE LOOKING INTO THAT. HE GETS THERAPY AT SCHOOL AND OUT SIDE OF SCHOOL. HE IS VERBAL BUT DOES NOT KNOW HOW TO COMMUNICATE YET. THAT IS STARTING LATELY. THE SEIZURES STARTED LAST MAY AND HE HAS HAD 7 ALL TOGETHER IN THE LAST YEAR. THEY ARE GETTING BETTER WITH MED'S. THE FIRST 2 WERE VERY SCARY BUT NOW I AM GETTING USE TO THIS AND I PRAY ALOT AND HOPE THAT WE CAN GET THEM UNDER CONTROL OR GONE. HE IS A WONDERFUL BOY AND FULL OF HAPPINESS AND LOVE. I FEEL BLESSED AND CAN NOT WAIT TO WAKE UP THE NEXT MORNING TO SEE WHAT WILL HAPPEN NEXT. I LOOK AT HIM EVERY DAY AND THINK ABOUT HOW BLESSED I AM TO HAVE SOMEONE THAT IS SO PERFECT. WHAT I MEAN IS PURE NOT KNOWING THE HARD THINGS WE ALL MUST KNOW ABOUT THIS WORLD THE WAY IT IS TODAY. HAVING A CHILD THAT IS SO INNOSENT IS A GIFT AND GOD WILL MAKE THINGS HAPPEN. WE ALL HAVE A PERPOSE AND EVERYTHING IS FOR A REASON. JUST ALWAYS GIVE ALL THE LOVE AND AFFECTION YOU CAN GIVE AND ENJOY LIFE AS MUCH AS POSSIBLE. GOD BLESS ↑ |
| Name: ******* | Date: Apr 7th, 2006 4:05 AM |
| Hi, I'm 19 years old and have CP. I have difficulty walking, I stutter, and have some vision problems. I have been in therapy almost all my life. I’ve had surgery; I wear AFO braces, and get Botox injections in my legs every 3 months. What I can tell parents of children with CP is to treat the kids and talk to them as if there were nothing wrong with them. Expect them to do things like chores and helping out depending on the severity of the CP. If your child wants to try something new don’t deny them the opportunity because you do like they can’t do it. With time they will learn what things the can or can’t do and will learn from failure. Make sure you have open communication with your child so they will feel comfortable talking to you. As they grow older and enter school there will be a lot of very hard times and bad experiences and need to feel comfortable talking to you. Even if some of the conversation will be uncomfortable for you to listen too, listen and be patient. They need to have at least one place were they can feel comfortable being themselves and that should be home. Always keep in mind that just because someone has a disability doesn’t mean they can’t find success in life. ↑ |
| Name: chris | Date: Apr 10th, 2006 5:20 AM |
| my son was just dignosed with cp he is 15 months old I'm really confused on what to do now ↑ |
| Name: jane | Date: Apr 11th, 2006 8:03 PM |
| Name: kye | Date: Apr 19th, 2006 5:50 PM |
hello,
how are you doing there,please mail me back i will help you out so let me know exactly what you need.mail:[email protected] will be expecting you mail.
cheers ↑ |
| Name: Tammy | Date: Apr 26th, 2006 3:56 AM |
| I have a 10 year old with CP, and would like to talk to others moms who have children with CP ↑ |
| Name: michelle | Date: Apr 28th, 2006 2:22 PM |
| I have a 7yr old with cp,eating disorder, hearing loss,vision loss,things seem so hard i cry a lot i hate seeing her suffer. Were always at the doctors or hospitals. She goes thru so much testing shes so strong.She doesnt walk or talk. Her father dont have anything to do with her because of her condition ↑ |
| Name: Sarah Jean | Date: Apr 29th, 2006 12:28 AM |
| I have a brother with CP who was told he was blind and deaf when he was born. They told us he would be a vegetable... Through the grace of God we prayed over Caleb every night. We would trail m&m's on the floor to get him to crawl. Movies if he could stand for a full thirty minutes and many other sweet treats along the path. Now he is nineteen and in college, walking with a cain. This miracle can only be explained by knowing Jesus Christ as your savior. If you are facing a lifetime with a cp child let me encourage you to stop and ask Jesus to come into your heart and forgive you of your sins, turn your life over to God and begin a new life full of miracles!!!!!! This world can be filled with more Calebs! ↑ |
| Name: Jen | Date: Apr 29th, 2006 2:03 PM |
| I have a 5 year old daughter with CP. She was diagonsed with spastic diplegia at age 2 and has been wearing afo's since. I am taking her next week to see if she would benefit from botox and casting. Any information or advice you can give me would be really helpful. ↑ |
| Name: Kim | Date: Apr 30th, 2006 4:36 AM |
| I have an almost 4yr old with CP. It is the hardest thing to do. I would love to chat about raising him with you. ↑ |
| Name: kimberlin | Date: Apr 30th, 2006 4:51 AM |
| My 4 y old Hunter was diagnoised withCP just before his 2nd birthday. I have a stepson who is almost 11, my eldest is almost seven then there is Hunter and we just had a new arrival in January. I find it real challanging trying to spread my time between all of them, but somehow I manage it. Hunter cannot talk, but he does walk. Which I'm very greatful for. But it doesn't make me anymore happy about his situation. I love Hunter. he is a beautiful boy, but i feel constantly sad for him and feel horrible guilt about it. I know I didn't pass it on to him, but the fact that we don't know how he got it is hard for my husband and I to not feel guilty. My emailaddress is [email protected] I would love to chat to other mums about raising a child with cp ↑ |
| Name: bob | Date: May 3rd, 2006 5:48 PM |
| teaching suggestions on it ↑ |
| Name: chevi | Date: May 4th, 2006 3:10 AM |
hi, my son is 4 yrs. old with cp. he was a preemie and diagnosed at a year. he's had heavy therapy since then. and he is currently walking with a walker, and in a mainstream class.
we did surgery with Dr. Nuzzo in NJ. he had percutaneous releases and we've seen some decent results in his range of movement and ability. But i really want him out of the walker. we started him with crutches, but he has such poor balance that its really early. weve gone to Ramon and his medek method, but my son screamed through it. i have a therapist who uses the medek method, i find it helps, along with ndt. anyone out there who has info for me would be great thanks. ↑ |
| Name: sandeep | Date: May 4th, 2006 5:33 PM |
do we have any problems, if parents have same blood group.\
i.e if both mother & father have same blood group do we have any problem for pregnancy. ↑ |
| Name: Margie | Date: May 9th, 2006 2:09 PM |
Chevi,
To answer your question there are other option which could further your child's development. I am a physical therapist with years of experience with children with cerebral palsy and I have seen good results in children who have completed intensive suit therapy. This intensive program increases strength, balance and overall function in a short period. If you have any questions or need more info please feel free to ask me. ↑ |
| Name: chevi | Date: May 11th, 2006 3:51 AM |
margie,
thanks for your response. i've heard differing info on the suit therapy, there are soooo many out there how do i know who is good? we actually are using theratoggs at times with his pt but its so not user friendly! he also goes swimming which is great. ↑ |
| Name: Nichole | Date: May 11th, 2006 2:01 PM |
| I have a 3 year old son with mild CP and have been looking for groups/individuals to talk to with children similar to my son. In my area, northern Illinois, 2hours west of Chicago, I feel like there are not many kids like him. His condition is mild, basically it affects his walking and coordination the most, his hearing, vision, mental capacities are good. He does have mild dysarthria, which affects his tongue and he is unable to produce some letter sounds, but mostly he is well understood with a very large vocabulary. But I feel like he is stuck between the "normal kids" and kids with worse handicaps. He's been in physical therapy since he was 6 months old, and currently he is seeing a PT, OT, speech therapist, neurologist and phyziatrist. He has used AFO's, SMO's, Benik vest, Theratogs, and Botox. And while these appliances help when they are on, he reverts back to the pigeon toed, unbalanced walking when they are not on. Family members are still having a hard time adjusting to his needs, and my husband and I try the best we can but I would like to start correspondence with other parents of kids like my son Hayden. We are currently involved in a lawsuit because of my sons condition, I would like to hear from anyone involved in or done with a lawsuit, to know what I can expect or to help others involved in a case like mine. My email is [email protected]. ↑ |
| Name: Margie | Date: May 11th, 2006 7:19 PM |
Chevi,
There are over 65 clinics using therasuit method in the U.S. People who originated it here are parents of a child with cerebral palsy (she is now 14 and walking), she was in a wheelchair until she was 8 years old. The clinic who started the therasuit method is located in Michigan. Their website is www.suittherapy.com. You can find more info and clinics in your area on this website. Look for a clinic that employs therapists from Euromed Poland. This is where this type of therapy originated prior to being brought to the U.S. and these therapists have a wealth of knowledge and experience. I have been utilizing the therasuit method over the past few years with great results. If you have any further questions please feel free to ask. ↑ |
| Name: Casandra Moreno | Date: May 13th, 2006 9:09 PM |
| Hi everyone! I have a 7 yr old daughter with CP and seizures. Isn't it odd how these little angels suffer from so many things but yet their smile brightens everyone's day? They suffer from surgeries, seizures, ridicule from other children but yet they keep that smile. We could learn something from them, well, at least I could. ↑ |
| Name: penny | Date: May 15th, 2006 9:18 PM |
| hi am new to this forum and just wanted to talk to someone eles out there with special need children ↑ |
| Name: penny | Date: May 15th, 2006 9:35 PM |
| my son has cp seizures and also a blood disorder and he is my sun shine all the time ↑ |
| Name: Christi | Date: May 16th, 2006 4:08 AM |
| My son is ten years old and he has CP. I would really like to chat with someone else who is raising a child w special needs. ↑ |
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