| Name: Sandra | Date: Jan 30th, 2008 4:34 AM |
| I have a daughter with cp. S he is 21 years old. We live in Montgomery Al ↑ |
| Name: Tonya Daley | Date: Feb 2nd, 2008 8:26 PM |
| Yeah I have a son that is now 2 and a half. He has Cerebral Palsy ↑ |
| Name: Sallie | Date: Mar 1st, 2008 10:33 PM |
| i am 47yrs old i have cerebral palsy i am in a loving relationship i drive a car and live a very full life i atribuite this 2 the love of my family who never gave up on me even when others did i wish you the best ↑ |
| Name: Michel | Date: Mar 5th, 2008 2:17 PM |
I have a 2 and a half year old son with Cerebral Palsy (spastic diplegia) related to him being 3 months premature.I am not sure how severe your sons CP is???
Michel ↑ |
| Name: HoustonMom | Date: Mar 13th, 2008 2:25 AM |
I have a six year old son with CP.
He had PERCS surgery in October and seems to be doing quite a bit better. Prior to the surgery he was receiving botox injections aprox every 6-8 months. He started kindergarten this year and I fear they are about to tell us they want to hold him back another year. Just thought I'd post a response on this site.
[email protected] ↑ |
| Name: Yvonne Stone | Date: Apr 22nd, 2008 3:03 AM |
Hi,
I am a student at Sam Houston State University and I am doing a parent interview on children with special needs and how it effect the family. If you would be willing to anwser a few questions about this, I would really appreciate it. My email is [email protected] I am 2 semesters away from graduating with my major in special education. Thanks so much for any help you can give. ↑ |
| Name: Smilinjo | Date: Apr 24th, 2008 11:56 PM |
| Hi, I have three girls and my youngest has CP with seizures. She is almost 5. Her CP is not the norm however as she is severely hypotonic rather than hypertonic. she is an inspiration to all of us who know her because of her amazing spirit. I'm sure you all feel the same about your kids and grandkids:) I would love to talk to people who can relate to the daily highs and lows of rasing a special needs child. God Bless. ↑ |
| Name: carol byrd | Date: May 18th, 2008 11:16 PM |
| Name: Abbey Tipton | Date: May 18th, 2008 11:21 PM |
| I have a brother who is the age of 5. And he just had a surgry a week ago (dorsal rhizotomy) i think thats how you spell it,my grandma,mom and I is wondering if you had a child/children if you have we would like to know. He has CP. ↑ |
| Name: Jessica | Date: May 19th, 2008 1:58 AM |
| Hey, I am a mother of a 10 month old little girl that has CP and am looking on advise for how to work and keep involved? ↑ |
| Name: Ami | Date: May 19th, 2008 2:38 AM |
| Hello, I am hoping that someone who participates in this message board will respond to this message as I have been searching for chat/message boards for CP with no responses. I have a 10 month old with Spastic Quadriplegic CP.....I am reading all about the symptoms and while she has obvious problems with her arms, her legs don't seem to be as affected (No scissor gait or toe walking). Also, she does not drool or have any problem eating/swallowing. From what I have read it seems that these symptoms almost always occur with this form of CP....is it possible her legs are not affected? Since she has no apparent problems with her mouth, will she be able to talk?.....has anyone had a similar experience that may be able to answer my questions. I'm so frustrated b/c they make Spastic quadriplegia sound like she won't be able to do anything and even her arms are not so bad, she can reach for things and get her hand to where it needs to be. She says Dada and daddy too. I would greatly appreciate some feedback. My email is [email protected] ↑ |
| Name: lindalu | Date: May 19th, 2008 4:19 AM |
Ami
With CP your child is physically as severe as they are neurologically. What I mean by that is.... if you have a child that has difficulties with speech, motor, visual and has seizure activities they most certainly will have difficulties with balance, sitting, muscle control and walking.
If for instance your child appears to be cognitively aware, learning to talk and able to sit some what on his/her own then they are neurologically less severe. Most likely this child will be able to walk possibly alone but may also need assistance from a walking devices such as walker,cane or braces.
Regardless of the severity of Cerebral Palsy all children with this diagnosis will require physical theripy as well as possibly occupational theripy.
Physical theripy is very important! with out range of motion the child's muscles will begin to tighten thus causing several possible bone deformations. ↑ |
| Name: lindalu | Date: May 19th, 2008 4:39 AM |
Ami
There is another condition you may want to approach your doctors with it is spinal cord injury. One can be born with such a condition it is called a (Congenital Spinal Cord Injury). At an early age it is difficult to diagnosis this condition because the child is to young. My daughter was misdiagnosed at 8 months of age with Cerebral Palsy also with spastic quadriplegia. I always knew she didn't have CP because physically she was so retarded but cognitively so bright. Years later and several doctors she was finally properly diagnosed with a C5 incomplete spinal cord injury.
If your child is not drooling has no problems with speech able to reach and has no seizure activities, but yet... not able to sit on his/her own crawl or walk then it is not the proper signs of Cerebral palsy. ↑ |
| Name: Patty | Date: May 19th, 2008 2:47 PM |
| I have a daughter with cp. She will be 4 soon and starting k1 in September. ↑ |
| Name: Ami | Date: May 20th, 2008 9:52 PM |
| Hi Patty? What type of CP? ↑ |
| Name: greta | Date: May 23rd, 2008 6:45 PM |
| i have a little girl with cp she is 10 years old now i know just how much work they can be but what a joy you get from them ↑ |
| Name: kerry | Date: May 27th, 2008 10:04 PM |
| hi my daughter lilly has diplegia cerebal palsy she is 4 yrs old cannot walk has a wheelchair standing frame and a k walker also has to be feed through ng tube which is a pain as they are always coming due to have a gasostomy in 3 weeks has had 2 lots of botox injections wears night and day afos is there any one with the same problems as every one i talk to with cp lilly seems to have more problems ↑ |
| Name: Tammy | Date: May 28th, 2008 5:40 PM |
| Name: Tammy Morris | Date: May 28th, 2008 5:53 PM |
| I went to Florida in 2007 with my daughter to do therapy and the results are great and hoping to go in 2008 July ↑ |
| Name: Carmelita | Date: Jul 4th, 2008 8:51 AM |
| Hello. My son is 7mo and has never been fed by mouth. He's got a g-tube. I just want another parent that I can relate with. No one that I know is in the same situation as my son or I. please email me. [email protected]. He's my first child and I'd appreciate it if anyone could talk to me about him. thanks. ↑ |
| Name: martin harris | Date: Jul 4th, 2008 3:05 PM |
| Hi everyone just to tell you about our new safe,secure and quick way of making new friends website.Please come and visit.i would love to hear from you.my partners daughter is victoria in the Heroes section,we are very proud..as soon as you join please message me, all the best martin and sue at www.specialfriendsonline.com ↑ |
| Name: Taylor | Date: Aug 31st, 2008 5:36 PM |
| Hi my name is Taylor. I like to talk to people. I am a little bit shy but fun to play with. If you want to talk to me write Find Taylor. SEE YA!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!! ↑ |
| Name: meg | Date: Sep 4th, 2008 6:07 PM |
| hi i know this is for children with cp cerebral palsy was wondering if there is a chat room for adults that have cp cerebral palsy i am adult and i have cp ↑ |
| Name: Tracey | Date: Sep 10th, 2008 5:31 AM |
| You would think after 71/2 year i would know everything! I can't feef funny saying how lost i feel ↑ |
| Name: lindalu | Date: Sep 11th, 2008 1:48 AM |
| Hello there ladies, some one asked if any one here has a child that has had lengthening s....Well my daughter has. My daughter is now almost 23 years old and had has had her hip flexers , heel cords and ham strings all lengthened. She was only 2 when she had the hip flexers, when she was about 8 she had the heel cords and ham strings done. It did help her a lot, however I did find that a vigorous PT routine works wonders in preventing them from tightening. ↑ |
| Name: steve | Date: Apr 1st, 2009 8:52 PM |
| Name: adam | Date: Apr 10th, 2009 8:21 AM |
| i have a 2 yr old daughter w/ cp ↑ |
| Name: Terri | Date: Jan 17th, 2011 12:11 PM |
| Hi, I have a 6 month old son who has severe cerebal palsy, just wandering if there is anyone who has had stem cell therepy in Germany? ↑ |
| Name: shaunz77 | Date: Jan 20th, 2011 9:57 PM |
I have a 4 year old child with mild Cerebral Palsy as well as seizures.
Please check out my blog:
http://johnsonspeci
alneeds.blogspot.com
Life
With a Child With Special Needs
Please pass it on if you know anyone interested.
Thank You,
Shauna Johnson ↑ |
| Name: shauna Johnson | Date: Jan 28th, 2011 11:12 PM |
My son Eric is 4 and has mild CP and seizures. I would love to help anyone in need...I started a new blog please take a look.
http://johnsonspecialneeds.
blogspot.com/2011/01/about-eric.html
↑ |
| Name: Sandy | Date: Feb 26th, 2011 3:00 AM |
| Hi I have a 21 month old daughter with severe cp. She has a feeding tube and lots of complications. Looking to talk to other parents who understand. Im on facebook Sandra Anderson Anglero. ↑ |
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