| Name: julie_duffek | Date: Dec 7th, 2006 4:26 AM |
| how long ago was your son diagnosed? ↑ |
| Name: sullykidsmom | Date: Jan 8th, 2007 4:09 PM |
| I have a 15 month old with CP and I am looking for other parents that can relate with me as well. I was wondering if you have ever heard anything about hyperbaric oxygen therapy? ↑ |
| Name: wdasd | Date: Jun 11th, 2007 10:51 PM |
| Name: Lois Redmond | Date: Jun 12th, 2007 12:02 AM |
| Hello, my 14 year old son was diagnosed with mild CP when he was about 7. He has always toe walked as a result. Last Thursday 6-7-07 he had heel cord surgery and we are looking to chat with someone who might had experienced this procedure also. We have questions and concerns. ↑ |
| Name: crazy | Date: Jun 25th, 2007 10:10 PM |
| hi i can relate i have a son thats 13 his a sweet heart but its a constent fight to keep him well . thank god for his smille and lafter keeps me going. ↑ |
| Name: Dr. Mayo | Date: Jun 26th, 2007 8:47 PM |
| I love to work for needful and God bless such sufferers a lot. please devote maximum time and passions to these. ↑ |
| Name: Lucy | Date: Jun 27th, 2007 3:47 AM |
Hi I have a 6 yr old daughter who has CP. She cannot sit, stand or walk at all. When I tried to let her stand, it's scissors shape. I heard about fetal stem cell therapy, therasuit therapy, etc but all of them are done overseas. Does anyone knows if any are done nearer to Malaysia? I would love to talk to any one who are in the same situation as me.
Email me at : [email protected] ↑ |
| Name: kim pullin | Date: Jul 19th, 2007 1:46 PM |
| hi, my youngest son is 2 and he has just been diagnosed with cp. were not sure yet of what case he has but he walks on the inside of his feet he has also stoped using his cutlery for feeding as he is finding hard to turn his rists. as a baby he used to stare up a lot and one of his eyes use to turn but has corrected his self as he has got older. he tends to collaps a lot on his leg and says his knees hurt. has any body else experieced this. ↑ |
| Name: Sandy | Date: Aug 1st, 2007 5:00 PM |
| My daughter who is 9 now had heel cord lengthening surgery in May. She is going to therapy and she started walking last week but now she is not walking. I feel there is a lot of fear in her. Has anyone had this problem. ↑ |
| Name: Rebecca | Date: Aug 17th, 2007 6:58 AM |
| Hi i have a 11 month old daughter who we found out today might have cp.I am still in a daze and know NOTHING about it.The only symptons she has is not having full control over her left hand,She tried using it but cant open her hand.She doesnt crawl but rolls everywhere and can sit up for a period of time.She needs to have a CT scan to see whether it is cp definaltey.Has anyone elses children had these symptons? ↑ |
| Name: ayman | Date: Aug 26th, 2007 6:25 PM |
dear sir or madam,
i would like to thank for your helpful site that i
found allot of information that help me,first i am
special needs teacher fro Jordan and i was looking for
an opportunity to take some training for special needs
with cerebral palsy for about one month in the
COUNTRY.
second i have on boy with cerebral palsy and his 21
years old he can walk but he cant speak and also i
want him to come for some teaching and learning
something .
so i hope that my request is possible for you i need
it for one month or one and half month max.
i hope that i can find any institute for that , and i
am ready for paying any fees that is possible
regards,
ayman al-zawati
0097150-4599907
0097150-2844455 ↑ |
| Name: arslan | Date: Sep 26th, 2007 11:29 AM |
hi,when i go yahoo chat room my talk button not green why help
me ↑ |
| Name: Jackie | Date: Oct 9th, 2007 4:12 AM |
| Hi, my name is Jackie and I'm a 20 year old college student with mild cerebral palsy. After reading the concerns from parents this is my advice: DO EVERYTHING YOU CAN i had 5 operations, botox, PT, OT, and TES all before the age of 11, and now I am 20 years old going to school to become and occupational therapist. i still have struggles but if it wasnt for the fearlessness of my parents and the willingness to do anything for me I wouldnt be where I am now. If any parent wants to talk or any child who wants to talk to someone who went through everything I'd love to share my stories, also anyone older who went through this i could also use someone to talk to ↑ |
| Name: kathleen | Date: Oct 12th, 2007 3:51 AM |
| hi, i am going through tests at the moment with my 16 month old baby girl, when she about a week old i notice seizures, now she 16 mths she is unable to rollover,crawl,walk, and has very little eye contact she may look at you for a second or two but then she rolls her eyes all over the place, mri showed she had softer and thinner then usaul parts of her brain, but they still cant give me an answer on what her problem is, but reading a lot,i am sure she has a form of cp,i am wondering if anyone thinks the same, please help. ↑ |
| Name: anjelsin | Date: Oct 12th, 2007 3:35 PM |
Have you read anything about PVL- periventricular leukomalatia
It causes a lot of problems and CP is one of them. Also can cause eye problems. My daughter is 15 months and we have some of the same problems. Have you been involved with early intervention? That is really important. Stretching to keep the muscles limber and to help develop skills. If you have any questions I'd be happy to answer if I can. There is also a site for PVL moms. Its yahoo chat for PVL. There is great information there.
Anjel & baby Anjel ↑ |
| Name: anjelsin | Date: Oct 12th, 2007 3:40 PM |
The last post was for kathleen sorry I didn;t specify.
Jackie I would love to chat with you when you have time. I have a 15 month old and she has PVL ,that causes CP. Anyway I would like to hear maybe some things that I am not doing for for or that I could do different. She has OT PT ST now. ↑ |
| Name: Jackie | Date: Oct 17th, 2007 4:14 PM |
| Anjel I would love to talk to you and give you ideas and different perspective on CP email me anytime with questions. [email protected] ↑ |
| Name: julia | Date: Oct 23rd, 2007 11:42 AM |
| hi im julia im a 20yr od South African girl whose has Spastic Qaudropleagia, i would really like to correspond with others who have cp or give advice to parents ↑ |
| Name: julzquad | Date: Oct 23rd, 2007 11:56 AM |
| hi im julia, im a 20yr old South African girl who is a spastic qaud, I would like to correspond with other people who have cp and give parents advice if wanted ↑ |
| Name: amir | Date: Oct 24th, 2007 2:24 PM |
hi i have a 25 years old daughter. with cp. she has finished her postgraduate stud in university .
i need some people who can help him find job at home. to make a better life for her. and to with in chat and... ↑ |
| Name: Ronnie. | Date: Oct 30th, 2007 7:50 PM |
| I have Cp and i was wondering if anyone cany help me find a house in Niagara Falls please .I need help with eat ,t v, drink . i also need help with my day life. please email me back at ronniecarrie@mountaincable ↑ |
| Name: Jenn | Date: Nov 6th, 2007 12:37 AM |
| Hi, my 11 year old daughter has c.p. I would like to chat with other parents that are raising speacial children like me. ↑ |
| Name: Jared Cunningham | Date: Nov 6th, 2007 8:59 PM |
| I am 15 and have cp. I slf-cath to go potty. ↑ |
| Name: jackie | Date: Nov 12th, 2007 6:10 PM |
| Hi, Like i said before my name is Jackie and Im 20 years old with spastic diplegia CP and would love to talk to anyone who needs advice or needs to talk to someone, Ive had many years of OT and PT and numerous surgeries and am familar with most of the things done to improve CP. I am also becoming an OT so I understand both sides pretty well. If anyone who has CP or a parent wants advice or wants someone to talk to please feel free to email me at [email protected] ↑ |
| Name: ann | Date: Nov 14th, 2007 6:06 PM |
| Hello, I have a 3 year old boy with cerebal palsy. I just wanted to chat with other parents dealing wth cp ↑ |
| Name: Tanya | Date: Nov 28th, 2007 10:15 PM |
| I have a 7.5 y old son with cp, I would like to know what everyone thinks about expecting too much from a highly functional child...when is too much too much? ↑ |
| Name: twan | Date: Dec 12th, 2007 5:21 AM |
| hey hows it going im a college student doing research on cp and i wanted to get more of a parents perspective, i have a litte cousin with cp which sparked my interest. what struggles do you face with doctors and medical treatment? that is if you dont mind me asking. ↑ |
| Name: cindy | Date: Dec 12th, 2007 10:41 PM |
| i understand what you all going through i also have a 7 year old with cp and a seizure disorder and he also has a g-tube. very tough but love him dearly. he is my world! ↑ |
| Name: cindy | Date: Dec 12th, 2007 10:47 PM |
| hi page,i have a 7 year old with cp, seizure disorder and also has a g-tube for the past 3 years. he is non-verbal and wheelchair bound. it's been tough but we love him dearly. ↑ |
| Name: amy | Date: Dec 31st, 2007 9:12 AM |
| so i just read scary things about how age affects cerebral palsy. my boyfriend has cp. very mild case to the right side. but still he is imobilized a bit. well anyways i was reading crazy stuff on the internet. it seems like people with the same type of case he has are now looking to wheel chairs in their mid life. is this common? ↑ |
| Name: Sandra | Date: Jan 30th, 2008 4:34 AM |
| I have a daughter with cp. S he is 21 years old. We live in Montgomery Al ↑ |
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