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Name: Dreams
[ Original Post ]
I am 30 weeks pregnant and we found out when I was 19 weeks pregnant that our child is going to be born with club feet. There really isn't alot of information out there. I know things could be much worse and still have the possibility of being worse. Club feet have been linked to spina bifida and all of our tests came back negative but it is still so frightening. You have all the images of having a perfect child and then you get news that there is a flaw and it is tuff to here. I have had time to think it through though and I think we were chosen to have this child and that is why us. I have a 4 year old and he was perfectly normal at birth and I never thought to expect differently. I am so excited for this baby boy to be born and I want just five minutes to hold him and cuddle him before they put casts on him. That is really what I think I am going to miss with him is the softness of a baby. Other than that he is going to be here for me to love with casts and all.
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Name: heather | Date: Dec 3rd, 2005 5:41 PM
how long does he have to have the cast on? how did they tell that he was going to have clubbed feet? thats sad...but after his legs heal out of the cast, im sure he'll be fine...its like a child breaking his arm and then its all better...im sorry you have to go through this...did they tell you by looking at a sonogram? 

Name: Jennifer | Date: Jan 13th, 2006 3:49 AM
I am 27 years old and I had club feet. According to my mother, the are a real pain. But she still has the first cast. I would never know I had club feet but my mother does remind me.
I do have a daughter with cerebral palsy which I do believe is somehow related. I did similar casting with her but at an older age. 

Name: George | Date: Jan 29th, 2006 6:33 AM
My wife and I are in the same situation as you. It has been very difficult to get information that puts our minds at ease. We look forward to the happiness that our boy will bring our family rather than the cosmetic appearance of his feet. We hope the best for you and your family! To Heather, a postee, we found out about the clubfeet during our sonogram. 

Name: Lisa | Date: Feb 11th, 2006 6:45 AM
My son was born with clib feet he is now 10 months he did the casting when he first was born and had one surgery to lengthen ligments he is going to shriners next week to have another surgery hopefully this will correct his feet you are going to love your baby so much you won't notice the flaw the club feet can be corrected enjoy your babay 

Name: Perfect Baby | Date: Feb 12th, 2006 2:19 AM
My baby is 8 months old and had a right club foot. I did not know until she was born and was so upset when they told me. She was ony 5 days old when they casted her foot. The first three months we went to the doctors each week to get recasted. The cast bothered me more then it did my baby. When she was 4 months we had surgery on her foot. She is doing great and we are now just excercising the foot. 

Name: Michele | Date: Feb 22nd, 2006 6:55 PM
My nephew was born with club foot on his right foot only. The parents did not know that he had it until he was born. They casted him for a while and then he was to wear the shoes with the bar between them. I have a daughter who is 6 weeks older than my nephew and he was walking before her and to look at his feet, you would never know which one was the club foot. He was very lucky and did not need surgery, but Ill say a prayer for you and know that there is always someone out here you can talk to! :) 

Name: Autumn | Date: Feb 26th, 2006 2:29 PM

Name: lisa | Date: Mar 2nd, 2006 5:39 AM
My third child was born with club feet and I was devestated we found out during my first ultrasound. When he was born he was the cutest little guy crooked feet and all. He had his first set af casts put on when he was 4 days old. I cried for weeks because I felt so sorry for him and I kept wondering why me? But now he is three and he is fine he is full of energy and people who dont know about his feet dont notice anything. I hated him getting casts on because he would j ust scream the whole time. But now I realize he wasnt crying because it hurt he was crying because hes lying there with somebody holding his legs still so he couldnt move around at all. At the time it seems so bad but it went by so fast and I took lots of pictures of his feet as we went along. I didnt really want to but now Im really glad I did. We also learned at about his second set of casts that his hip was out of place which sometimes goes with club feet. So now I have this baby in casts and this stupid harness that he had to wear as well and he had to wear it 24 hrs a day it made him look like a frog. So he should of been in casts for only 6weeks but with the harness he couldnt wear the shoes so he had to stay in casts for close to 5months. But it seems like so long ago and those casts made him so strong he started rolling over at a month an a half casts and all. So be strong and hang tough cause it doesnt take long. 

Name: Amy | Date: Mar 3rd, 2006 10:56 PM
i just had my 20 week check up. My doctor told me the same thing. Mine is also a boy. My doctor also told me that he has enlarged kidneys. Did you have that problem? I am very scared. She ran a bunch of blood work on me. I have an appt on next friday for an ultrasound with a specialist doctor. Please write back. Your story sounds exactaly like mine. I hope my tests come back normal.
[email protected] 

Name: caroline | Date: Mar 13th, 2006 7:37 PM
hi i was born with club feet years 36 years ago yes it has affected me but i think i am now a stronger person for it . because people don't know or understand it they think it is some awful disability but i can still walk i have some pain in my feet but i grew up with it so i don't know any different. i now have 2 perfect children who both have perfect feet (althought a little large and costing me a fortune in shoes) . both my feet were affected but believe me there are worse problems a person could have so although it may seem awful now there is and will be light at the end of the tunnel just be thankful for the beautiful baby that you are going to have. 

Name: George | Date: Mar 20th, 2006 12:49 AM
Thank you all for sharing your stories. I posted in late January and can't wait for our boy Dylan to be born. We have met with various doctors but I feel that I know as much as they do after reading so much on the Internet. I feel that my job now is to educate the people around our family. I never really knew what club feet were until January 16th, 2006. Now it is a mission of mines to let others know. I wish you all the best with your wonderful children! 

Name: Jean | Date: Mar 25th, 2006 1:36 AM
My son Jake was born 14 years ago with severe bilateral clubbed feet. He had trhee deformities: his feet were curved, clubbed and also pointing downward. After taping his feet every other day, then weekly casts that went up and over a bent knee because he would kick them off easily due to the lack of a bend, at age 6 months Dr's gave up on casting and he wore braces until we opted for surgery. He had a full release surgery at 8 months. He has barely any calf muscles, his feet are very ugly (but he doesn't care) and they hurt yet he doesn't complain much. The Awesome thing about him is that he has worked hard and can stand on his tip-toes some. He also is a 9 time All-American wrestler, has won National Championships, State Tournaments, and Regional Tournaments. He began wrestling at age 4 and the techniques of pushing with your toes and footwork has helped him immensely. We never made a big deal about his problem and I think I only have one picture of him in taping and a few with casts. We went back to the hospital at age five for his check-up and he didn't even know why we were there. Kids attitudes toward disability are formed by parental actions. Jake was our third out of 4 kids and the only one affected with any kind of deformity. My advice? Handle what is given you in life and make the best of every situation. 

Name: ivonne | Date: Mar 25th, 2006 6:45 PM
Hi,i am 33 weeks and just found out that our third baby boy has a right clubbed foot the doctor said everthing else seems fine but we are still worried we have never heard of this condition we are very scared.but every thing will be fine we have alot of faith. 

Name: penny | Date: Mar 27th, 2006 1:21 AM

Name: kAyLa | Date: Apr 3rd, 2006 2:20 PM
I am 22 weeks pregnant and i found out last week when i went for an ultrasound to find out the sex that my baby boy might also be born with clubbed feet but they asked me if i wanted to go to a specialist and get a second opinion to find out for sure so they are in the process of schedualing an appt for me with a specalist that is an hour away but yeah i know what you mean by there isnt a lot of info out there and i wish you the best of luck with your little boy i read on the internet somewhere that boys are more likely to get it than girls but even if they tell you that your baby might have clubbed feet by looking at the ultrasound nothing is 100% until after the baby is born because it could all just be the way he was sitting in your uterus. 

Name: Cassie | Date: Apr 11th, 2006 5:32 PM
My son is 12 weeks old. I didn't know until he was born that he had clubbed feet. Soat least you have time to get used to the idea. But He was in cast for 9 weeks. And you know what your baby will still be soft and he will still be your little night time alarm clock. and9 weeks is just a grain of sand on the beach of his whole life. 

Name: ivonne | Date: Apr 16th, 2006 6:29 AM
how does his feet look now cassie? 

Name: Tonya | Date: Apr 16th, 2006 9:57 PM
I am 32 years old and ws born with bilateral clubbed feet and went through the casting at 4 days old and the surgeries. My parents said the hardest part was not knowing what it was then and the mulitple trips to get the casts changed I guess I was not to nice to the walls! Now I know I had it and sometimes have foot pain but I have learned to deal with it and if I didnt tell someone they would never know. Dont worry about it guys you will love your child just the same and they will do fine. 

Name: Sally | Date: Apr 18th, 2006 2:39 AM
I am 45 years old and was born with club feet. I have 4 other sibling who were not affected.
I believe at the time the doctor did the best job for me.
I was treated by surgery the first being when I was 3 months old.
I have 3 prefect childrean with normal feet.
I am a good walker, tennis player, water skier, swimming coach and during my school years I was the captain of the sports team for 3 years. I have never let anything stop me having a go although I am very sure footed.
My advice is let your babies grow with lots of and be happy with who they are. 

Name: Sally | Date: Apr 18th, 2006 2:41 AM
I am 45 years old and was born with club feet. I have 4 other sibling who were not affected.
I believe at the time the doctor did the best job for me.
I was treated by surgery the first being when I was 3 months old.
I have 3 prefect children with normal feet.
I am a good walker, tennis player, water skier, swimming coach and during my school years I was the captain of the sports team for 3 years. I have never let anything stop me having a go although I am very sure footed.
My advice is let your babies grow with lots of love and be happy with who they are. 

Name: Jamie | Date: Apr 18th, 2006 3:09 PM
i am 21 and my son will be 5 in june and he was born with a left club foot. He has had 4 surgeries and been in casts and braces all his life. We just found out he has problems with his hips, it's so bad right now that he can't walk even to the bathroom. He is going in for a bone scan tomorrow morning. And he asks me why his sister who is almost 2 doesn't have to go through what he is going through. And I just don't know what to tell him..i am also 19 weeks pregnant and i wonder if this baby will have clubbed feet as well. 

Name: kye | Date: Apr 19th, 2006 5:56 PM
how are you doing there,please mail me back i will help you out so let me know exactly what you need.mail:[email protected] will be expecting you mail.


Name: DylansMom | Date: Apr 30th, 2006 10:26 PM
Our now 7 month old son was born with clubbed feet. We had no idea he had them until he was born. His right one has been corrected by serial casting, physical therapy and orthopaedic shoes. His left one however is being stubborn. He'll have surgery when he's nine months old. He'll be in a long leg cast for 6 weeks, then a short leg cast for another six weeks. I haven't met any other parents so far of babies w/ clubbed feet, or that have gone through this surgery. I'm kinda scared.... 

Name: JENNY | Date: May 3rd, 2006 5:20 PM
My daughter was born with club feet and like you I found out at a 20 week ultra sound. I completely understand all that you are saying, from the fears of something more serious being wrong and the disappointment of having to hold a precious baby with casts. I went to Univerisity of Wis, Madison before I delivered my daughter to talk to the Dr who would be treating her and he reassured me. I'll never forget how relieved I felt after seeing him. He said take it easy get to know your baby and bring her in when she is about 2 or 3 weeks. I was surprised because everything I read said baby should be in casts immediately. The thing is by the time I finally brought her in I was ready. I wanted her feet fixed, and I couldn't wait to start casting but I honestly didn't feel like that in the hospital right after I had her. So check into this maybe it will help you to. By the way she is 7 months now and her feet look awesome, she had one small surgery and now wears the dennis browne bar! 

Name: ANNA | Date: May 5th, 2006 4:10 PM
I just had my ultrasound yesterday with my fiance. I am 19 weeks. This is my 3rd child, his 4th, our 1st together. During the ultrasound, we were told by the technician that everything was good, healthy...and a boy. I have 2 girls and he has 1 girl and 2 boys. I just got the call from my doctor this morning that the right foot is clubbed..and the left foot "might" be. I do not know how to handle this news..our other childern are all perfectly healthy. So, my immediate reaction, was to cry (and I'm at work). So my doctor wants me to take a Level 2 ultrasound, which I have scheduled in 4 days. The next 4 days will be...crucial. She wants them to check if the left foot is also clubbed, see if the "problem" is isolated to his feet..and to make sure there are no other complications. The other stories I've read seem to have calmed me down a little. But I admit, I am still a bit distraught; and I am currently waiting for my fiance to call me so I can let him know. Any other news, info, anyone can submit, I (and my fiance) will appreciate. It helps to read others stories and be encouraged. My email is: [email protected] 

Name: Janet | Date: May 21st, 2006 1:45 AM
I am the mother of a 32 year old woman who was born w/ a dislocated hip and bilateral club feet.
My own mother had two retarded children (one brain-damaged and now quite high functioning; the other Downs who died at age 5) -- so I always feared THAT as a birth defect.
When I found out that Gay had club feet -- when she was born -- I thought I was LUCKY.
The next five years were busy and challenging -- w/ braces for the hip; casts, 4 surgeries and assorted braces and splints -- and some tears.
Gay was a very easygoing child though -- and the time flew by. She learned to walk 3 separate times -- and never looked back.
I was TIRED of coping after those 5 years but I NEVER felt like I had it bad. In the list of birth defects, Gay's hip and feet were NO BIG DEAL.
Today she is a bio-medical engineer -- working w/ orthopedic surgeons -- partly because of her childhood experiences.
Now she is pregant -- and her second child's ultrasound showed club feet. At least I know how to support her -- but she is strong, capable and loving already. Her baby is lucky! 

Name: Lilian | Date: May 21st, 2006 5:08 PM
Hi everyone, I had my baby on Jamuary 30,2006, she was born with club feet my husband and I had no idea until the day she was born. My baby girl so cute we were told about this special doctor who does casitn and she told us she has to be casted right away and it will take 6 weeks for to be in cast. I was worried for my baby the six weeks came and she is still in cast we tried to put her in her shoes with bar but she cried the whole time, The doctor told us to remove the shoes and she put her back in the cast and I m really worried because it says that if she stays in cast for more than 7 cast It will be over processing we want to go for a second opinion she had 2 surgeries but my baby is such a nice baby it bothers me more than her she kicks her feet so high but I am really worried about her can anyone tell me if your baby went through this ponsseti method of casting? 

Name: Sue | Date: May 22nd, 2006 7:22 PM
I have an 8(in July) year old daughter, she was born with a left club foot. This wan't picked up with the ultrasounds. I was young when she was born, it was so confusing to me. I was upset because I didn't smoke, drink alcohol, do drugs, etc., but that isn't the cause of club foot. My tiny 6 pound 13 oz baby had a tiny cast put on just hours after birth, and I regret the casts. Every 5 days, at home, I would soak her leg\cast in warm water and remove it myself just to visit the doctor a couple hours later and have a new cast put on. Well, after a couple months, the doctor said that the casts aren't helping as much as we thought they would, so surgery is definately needed to strech the muscles and tendons, then to position the foot with another (larger) cast. 8 months old, she had her first surgery, I was so nervous. But when the doctor came out to the waiting room and said "the surgery went very well, you can see her in just a few minutes, she is waking up from the anstsia. and everything is great" Daddy & I went into the room and she was looking around and she was so glad to see us. a few minutes later, I held her, about an hour and a half later, we got home. I cried, I sat her down on a blanket with some toys, well, she didn't want to sit!!! She scooted over to the coffe table, grabbed on and pulled herself up. She was walking around the coffe table with a smile, it was amazing. She had another surgery to remove the pin they placed in her foot, but that was simple, she was out for less than a half hour and that went smooth. She had a surgery when she was four years old to correct the front of her foot, she had a cast from her thigh all the way down, her tips of her toes stuck out! She hopped around like a trooper!!! Kids are amazing at healing, there are truely angels. She is now in cheerleading and she also took gymnastics class last year. She dances around like her feet are a perfect 10. :-) 

Name: Sue | Date: May 22nd, 2006 8:54 PM
I forgot to mention about the metal bar with the shoes attatched, we tried to use that for our daughter but the shoes wouldn't stay on, her left foot was really bent inward and would not stay in the shoe. But the shoes with bar attatched is usefull to some. 

Name: Sue | Date: May 22nd, 2006 8:57 PM
...And sweetheart, you make sure you tell your doctor and everyone that you want to hold your baby as soon as the baby is born, unless their are other more serious issues, then theres no reason why you can't hold your new bundle. :-) And club foot isn't that bad at all, it's fix-able 

Name: Dorothy Van Egmond | Date: Jun 9th, 2006 3:04 AM
I was born with severely clubbed feet and had surgery 13 times. Children are resilient and recover quickly from procedures. My mother made many sacrifices to get me treatment and it was much harder on her than on me. Don't worry about your child. Get him every surgery, physical therapy, pairs of shoes that he needs, and make sure he does his exercises. He'll be fine. 

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